On-line Support...

National (Australian only):

Gynaecological Cancer Support  www.gynaecancersupport.org.au

This site is a relative new-comer, and very welcome one. It offers a discussion forum to support to women diagnosed with gynaecological cancers. Situated in NSW, it does not offer medical support but, "...psychosocial support, that validiates and normalizes the expression of the range of understandable emotional responses to the diagnosis of cancer, [that] has been shown to improve quality of life outcomes".

Recto-Vaginal Fistula Support Network(RVFSN)   www.rvfsupportnetwork.org.au

Located in the state of Victoria, RVFSN s a non-profit incorporated association whose aim is to support women who sustain a fistula through childbirth, by providing shared experiences, contact with people who can help and current treatment knowledge.

International: 

The International Pudendal Neuropathy Association (TIPNA) www.tipna.org

Do you have pain in your genital area, and/or pelvic region, buttocks, or anywhere in your "sitting area"? Is it made worse by sitting, is the pain getting worse, have you been going from doctor to doctor? Maybe this website can help - they have an excellent Forum which is open to sufferers all over the world.

Vaginismus Awareness Network  www.vaginismus-awareness-network.org/

An excellent, comprehensive, and friendly  USA site dedicated to various women's issues. This site offers extensive information, reference materials, advice for both women and doctors, and much more - including on-line support forums for vulvodynia, dysareunia, v. vestibulitis, and vaginismus.

Vulva Awareness Campaign Organisation (VACO) www.vaco.co.uk

An excellent, and very comprehensive UK website dedicated to surviving vulval cancer, with personal survivor's stories, told with great insight and compassion. All aspects of diagnosis, treatment and going home are covered here. There is, also, a link to the Cancer Buddies Network

This page up-dated Mon, 06 April 2009   00:20:24